Publications

The Promise and Peril of Alzheimer Disease Prevention
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Prognostic Value of Blood-Based P-Tau217 Levels for Progression to Cognitive Impairment
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Ceperognastat in Alzheimer Disease: Lessons From a Negative Clinical Trial
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Hippocampal asymmetry captures non-amyloid-related risk of memory decline and clinical progression
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Beyond Binary-The Case for Amyloid Centiloid Quantification
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Eligibility of men vs. women in Alzheimer’s trials: Inclusive vs. representative
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Scalable markers for early cognitive decline: Plasma p-tau217, subjective cognitive concerns, and digital testing: Results from the A4/LEARN studies
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A plasma protein signature for cerebral amyloid angiopathy
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Interrupted Time Series Methods for Nonrandom Sampling Study Designs With Known Sampling Weights
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Outreach, Recruitment and Engagement Cores of NIA-designated Alzheimer's Disease Research Centers: Current strategies and future directions
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Amyloid-related imaging abnormalities (ARIA) in anti-amyloid therapies for Alzheimer's disease: An update from the Alzheimer's Association ARIA workgroup
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Amyloid Imaging and APOE Genotype Disclosure and Short-Term Psychological Distress
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Cognitive screening biases in a secondary prevention Alzheimer's disease clinical trial
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A path to preventing cognitive impairment due to Alzheimer's disease: initiatives beginning in the USA.
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Digital memory assessments and plasma pTau217 enable efficient preclinical Alzheimer's trials
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Uniform Amyloid Thresholds Across Populations
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Disclosing Alzheimer Biomarkers to Motivate Brain Health Behaviors
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Blood Tests for Alzheimer Disease—What to Do With the Holy Grail
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Impact of learning APOE genotype on cognitively unimpaired adults: a pre-screening cohort study of the Alzheimer’s Prevention Initiative Generation Study 1
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Current evidence of randomized clinical trials on hospice-eligible patients with agitation and dementia: A narrative review
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Prognostic value of plasma glial fibrillary acidic protein in cognitively unimpaired older adults: Results from the A4 study
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Recruitment and retention in a preclinical AD trial: comparisons between academic and non-academic sites
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Alzheimer’s Disease Clinical Trial Decision-Making Among Patients with Mild Cognitive Impairment and Their Study Partners
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Characterizing the Research Participant Recruitment Funnel for Alzheimer's Secondary Prevention Trials: Results from A National Survey of U.S. Adults.
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Modernizing diagnosis of Alzheimer's disease: A review of global trends and Asia-specific perspectives.
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Alzheimer's Disease Research Center Down Syndrome Cores: Experience from two sites
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Effectiveness of a local recruitment registry in older adults in Southern California.
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Five years of the Institute on Methods and Protocols for Advancement of Clinical Trials in ADRD (IMPACT-AD).
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It is time to share Alzheimer biomarker results in dementia with Lewy bodies.
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Late-life emergence of neuropsychiatric symptoms and risk of cognitive impairment in cognitively unimpaired individuals
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Racial and ethnic differences in plasma p-tau217 ratio biomarker eligibility rates in a preclinical AD trial with lecanemab.
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Aligning Alzheimer Disease Biology With Care
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Understanding participants' attitudes toward research in the CARE registry.
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Association of Alzheimer's disease concerns with amyloid burden and lifestyle behaviors in cognitively unimpaired older adults.
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The Bad Medicine of Doctored
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The science does not yet support regulatory approval of amyloid‐targeting therapies for Alzheimer's disease based solely on biomarker evidence
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Increasing representation of Asian American, Native Hawaiian, and Pacific Islander communities in aging, dementia, and caregiving research: An update from the CARE registry
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Estimating the optimal cutoff for the IGT-AD Distress subscale adapted for amyloid PET results disclosure.
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Virtual Data Collection Strategies in Research on Alzheimer's Disease and Related Dementias (ADRD)
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Pharmacokinetic and pharmacodynamic assessment of oral nicotinamide in the NEAT clinical trial for early Alzheimer's disease
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Effects of intensive lifestyle changes on the progression of mild cognitive impairment or early dementia due to Alzheimer's disease: the need for rigor.
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Disclosure of elevated amyloid status is not associated with long-term suicidality in a preclinical AD trial
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Research Attitudes Questionnaire scores and retention in a recruitment registry.
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Impact of study partner replacement in a mild cognitive impairment clinical trial
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Phase 2A Proof-of-Concept Double-Blind, Randomized, Placebo-Controlled Trial of Nicotinamide in Early Alzheimer Disease
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Impacts of informant replacement in two industry-sponsored Alzheimer's disease clinical trials
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Views and Perceptions of Amyloid Imaging in a Preclinical Alzheimer's Disease Trial
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Alzheimer's disease biomarkers and the tyranny of treatment
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Community recruitment of underrepresented populations to the AHEAD 3-45 preclinical AD trial using novel partnerships with nursing and community-based organizations: Lessons and outcomes
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The utility of recruitment incentives in early Alzheimer's disease trials.
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Centers for Medicare and Medicaid Services Coverage of Amyloid PET
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The AlzMatch Pilot Study - Feasibility of Remote Blood Collection of Plasma Biomarkers for Preclinical Alzheimer's Disease Trials
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Estimating Socio-Economic Status for Alzheimer’s Disease Trials
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Comparing research attitudes in Down syndrome and non-Down syndrome research decision-makers
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Apolipoprotein E Genetic Testing in a New Age of Alzheimer Disease Clinical Practice.
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Pre-Randomization Predictors of Study Discontinuation in a Preclinical Alzheimer’s Disease Randomized Controlled Trial.
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Longitudinal Trajectories of the Cognitive Function Index in the A4 Study
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Amyloid and Tau Prediction of Cognitive and Functional Decline in Unimpaired Older Individuals: Longitudinal Data from the A4 and LEARN Studies.
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The Collaborative Approach for Asian Americans and Pacific Islanders Research Dominantly Inherited Alzheimer Network Trials Unit (DIAN-TU): Trial Satisfaction and Attitudes towards Future Clinical Trials.
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Racial and ethnic differences in plasma biomarker eligibility for a preclinical Alzheimer's disease trial
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Immediate Reactions to Alzheimer Biomarker Disclosure in Cognitively Unimpaired Individuals in a Global Truncated Randomized Trial
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Study Partner Type and Adverse Event Reporting in Mild-to-Moderate Alzheimer's Disease Clinical Trials
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A Pragmatic, Investigator-Driven Process for Disclosure of Amyloid PET Scan Results to ADNI-4 Research Participants.
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Alzheimer's Disease Biomarker Decision-Making among Patients with Mild Cognitive Impairment and Their Care Partners.
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Post-disclosure distress among racial and ethnic groups in a preclinical AD trial.
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Alzheimer’s Disease Cooperative Study. Study Partner Type and Adverse Event Reporting in Mild-to-Moderate Alzheimer's Disease Clinical Trials.
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Vietnamese American Perspectives on Engagement in an Aging-Focused Research Registry.
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Eligibility Rates among Racially and Ethnically Diverse US Participants in Phase 2 and Phase 3 Placebo-Controlled, Double-Blind, Randomized Trials of Lecanemab and Elenbecestat in Early Alzheimer Disease.
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Examining Utilization of Formal Supports and Related Impacts on Overall Well-Being Among East Asian American Family Caregivers of Persons With Dementia: A Mixed-Methods Study.
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Remaining Questions in a Brave New World of Alzheimer's Disease Care.
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Biomarker disclosure protocols in prodromal Alzheimer's disease clinical trials
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The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer's disease and related dementias, aging, and caregiver-related research.
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Economic hardships of Korean American family caregivers of persons with dementia: a mixed-methods study.
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US Adults' Likelihood to Participate in Dementia Prevention Drug Trials: Results from the National Poll on Healthy Aging.
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Testing for Alzheimer Disease Biomarkers and Disclosing Results Across the Disease Continuum.
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Recruitment across two decades of NIH-funded Alzheimer's disease clinical trials.
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Centralizing prescreening data collection to inform data-driven approaches to clinical trial recruitment.
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Asian Americans' and Pacific Islanders' preferences in recruitment strategies and messaging for participation in the CARE registry: A discrete choice experiment.
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Retention of Study Partners in Longitudinal Studies of Alzheimer Disease.
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Alzheimer’s Disease Neuroimaging Initiative. Frameworks for estimating causal effects in observational settings: comparing confounder adjustment and instrumental variables.
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Recruitment across two decades of NIH-funded Alzheimer's disease clinical trials.Cohort Effects in Alzheimer's Disease Trials: An Empirical Assessment Utilizing Data from the Alzheimer's Disease Cooperative Study.
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Advisory Group on Risk Evidence Education in Dementia (AGREED). Biomarker disclosure protocols in prodromal Alzheimer's disease clinical trials.
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A4 Study Team. Trial of Solanezumab in Preclinical Alzheimer's Disease.
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Brain Health Registry Study Partner Portal: Novel infrastructure for digital, dyadic data collection.
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Estimating attrition in mild-to-moderate Alzheimer's disease and mild cognitive impairment clinical trials.
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Retention of American Indian and Alaska Native participants in the National Alzheimer's Coordinating Center Uniform Data Set.
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Effects of informant replacement in Alzheimer's disease clinical trials.
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Diversifying Recruitment Registries: Considering Neighborhood Health Metrics.
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A Blood Test for Alzheimer's Disease: It's about Time or Not Ready for Prime Time?
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Moving beyond disclosure: Stages of care in preclinical Alzheimer's disease biomarker testing.
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You've Got a Friend in Me: How Cognitively Unimpaired Older Adults Select a Study Partner to Participate with Them in Alzheimer's Disease Research.
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Retaining Participants in Longitudinal Studies of Alzheimer's Disease.
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Dyadic Enrollment in a Phase 3 Mild Cognitive Impairment Clinical Trial.
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Strategies Associated with Retaining Participants in the Longitudinal National Alzheimer's Coordinating Center Uniform Data Set Study.
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Anxiety and Depressive Symptoms and Cortical Amyloid-β Burden in Cognitively Unimpaired Older Adults.
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Perceptions of Research Burden and Retention Among Participants in ADRC Cohorts.
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Tackling a Major Deficiency of Diversity in Alzheimer's Disease Therapeutic Trials: An CTAD Task Force Report.
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The Advisory Group on Risk Evidence Education for Dementia: Multidisciplinary and Open to All.
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What Should the Goals Be for Diverse Recruitment in Alzheimer Clinical Trials?
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Preclinical Alzheimer Disease and the Electronic Health Record: Balancing Confidentiality and Care.
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Effect of Aducanumab Approval on Willingness to Participate in Preclinical Alzheimer's Disease Trials.
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Alzheimer's Disease Clinical Trial Research Adaptation Following COVID-19 Pandemic Onset: National Sample of Alzheimer's Clinical Trial Consortium Sites.
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Research attitudes in families of individuals with Down syndrome: importance for clinical trials.
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Deciding with Others: Interdependent Decision-Making.
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The approval of Aduhelm risks eroding public trust in research and the FDA.
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Reasons for undergoing amyloid imaging among cognitively unimpaired older adults.
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Asian Americans and Pacific Islanders’ Perspectives on Participating in the CARE Recruitment Research Registry for Alzheimer’s Disease and Related Dementias, Aging, and Caregiving Research.
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Implications of FDA approval of a first disease-modifying therapy for a neurodegenerative disease on the design of subsequent clinical trials.
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The Institute on Methods and Protocol for Advancement of Clinical Trials in ADRD (IMPACT-AD): A novel clinical trials training program.
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Recruitment and Retention of Participant and Study Partner Dyads in Two Multinational Alzheimer’s Disease Registration Trials.
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Research attitudes questionnaire scores predict Alzheimer’s disease clinical trial dropout.
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Disparities by race and ethnicity among adults recruited for a preclinical Alzheimer’s disease trial.
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Using Direct-to-Consumer Genetic Testing Results to Accelerate Alzheimer’s Disease Clinical Trial Recruitment.
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Recruitment into the Alzheimer Prevention Trials (APT) Webstudy for a Trial-Ready Cohort for Preclinical and Prodromal Alzheimer’s Disease (TRC-PAD)
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Education and Message Framing Increase Willingness to Undergo Research Lumbar Puncture: A Randomized Controlled Trial.
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Short-term Psychological Outcomes of Disclosing Amyloid Imaging Results to Research Participants Who Do Not Have Cognitive Impairment.
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